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Yumiko Kawaguchi

かわぐち ゆみこ

Kawaguchi Yumiko

Profile

Gender
Female
Born
1962-01-01 (Tokyo, Japan)
Nationality
Japan
Languages
Japanese
Residence History
Tokyo, Japan → Philadelphia, USA → London, United Kingdom

Career

Occupations
non-fiction writer, care researcher, former elementary school teacher
Active Years
1988-
Affiliations
Care Support Momo Co., Ltd. (founder), Japan ALS Association (board member), ALS/MND Support Center Sakura-kai (NPO) (board member), Ritsumeikan University, Graduate School (visiting researcher)

Education

Tokyo Gakugei University
Faculty of Education
Degree: 学士
Year of Graduation: 1985
Country: Japan
Became an elementary school teacher after graduation; left the post in 1988
Ritsumeikan University
Graduate School of Core Ethics and Frontier Sciences / Doctoral Program
Degree: 学術博士
Year of Graduation: 2013
Country: Japan
Completed doctoral dissertation on conflicts around mechanical ventilation for ALS

Awards

Ōya Soichi Nonfiction Prize
2010
Work: A Body That Doesn't Leave: Living the Daily Life of ALS
Organization: Ōya Soichi Prize Committee
Result: winner
Hajime Kawakami Prize (Encouragement Award)
2013
Work: Doctoral dissertation (on conflicts around mechanical ventilation for ALS)
Organization: Hajime Kawakami Prize Committee
Result: winner (encouragement prize)

Awards & Nominations

Works

Major Works

A Body That Doesn't Leave: Living the Daily Life of ALS

2009 non-fiction

A personal and investigative account of supporting a family member with ALS at home using mechanical ventilation, documenting practical caregiving and the ethical and systemic issues encountered.

careALSfamilymedical ethicshome-based care

Beyond the Terminal Stage: For People Involved with ALS and All Serious Illnesses

2015 non-fiction

Explores end-stage care and approaches to supporting people involved with ALS and other serious illnesses.

end-of-life caresupport systemspatient and family perspectives

Bibliography

  • A Body That Doesn't Leave: Living the Daily Life of ALS
  • Beyond the Terminal Stage: For People Involved with ALS and All Serious Illnesses
  • Pocket Manual for Home Mechanical Ventilation: Daily Life and Support (co-editor)
  • Guide for Asking Helpers to Perform Phlegm Suctioning (supervisor)
  • Special Class: Let's Talk About Death (co-author)
  • Thinking About Abandoned Lives (editor/co-author)
  • Shouting for Care in an Age of Anxiety (co-author)
  • Illness, Disability, and the Books at My Side (co-author)

Style & Themes

Literary Style
reportage-style narrativepractice-grounded prosecalm yet empathetic voice
Recurring Motifs
everyday carefamily rolesconflicts between systems and ethics

Legacy

Through practical insights and critical examination of home-based care for ALS patients and their families, she has contributed to discussions on medical and caregiving systems and social support, bridging academic research and frontline practice.

Academic Societies

  • Japan ALS Association

Trivia

  • Returned to Japan from London in 1995 after her mother developed ALS.
  • Founded a home-visit care service company, Care Support Momo Co., Ltd., in 2003.
  • Won the Ōya Soichi Nonfiction Prize in 2010 for 'A Body That Doesn't Leave.'